Wednesday, July 31, 2013

Wednesday, July 31st

Please be in prayer for my nephew Micah.  They have put him back in the hospital in Minnesota because of his continued nausea and vomiting.  The plan is to do an endoscopy today or tomorrow to take at look at the the stomach, small intestines and the point where the two join, the pyloric sphincter.  Also, prayers for his mom, my sister, Dawn, as this recovery is taking quite a toll on her as you can imagine seeing your child sick for this length of time.  Thanks for continued prayers for Addison and our family but please lift up Micah and his family when you pray. Thanks and God Bless.

Monday, July 29, 2013

Monday, July 28th

Addison is still doing amazing after a week at home. Her blood sugars are still a little roller coastering but other than that she is awesome.  Micah seems to be turning the corner and hopefully on his way to getting back to North Carolina.

Friday, July 19, 2013

Friday, July 19th.......

Well firstly I must confess that I told a little white lie or two in the last blog.....but it was all for a good reason.....so Addison and I could surprise Thomas and Bailey like they did us a few weeks ago......We are HOME!   :) :) :-)  At Addison's appointment Wednesday Dr. C was so thrilled with her progress that he cleared us to come home to finish the last few weeks of post surgical recovery with notes to her pediatrician and a local endocrinologist.  We will have to go back to Minnesota at the six month mark and once a year for follow ups but for the time being we are back HOME!  She no longer has any tubes or holes coming out her body....other than the ones she should lol and she looks phenomenal.  Still on lots of meds and working through the diabetes but she will get there. Thank you all for every prayer, kind word, monetary gift, card, and all other acts of love and kindness, we are blessed beyond measure to have such an awesome support system.  Humbled, Grateful and HOME........

Wednesday, July 17, 2013

Wednesday, July 17th...

Well just finished three day whirlwind of doctor appointments.  Saw our surgeon Dr. Chinnokotla today for first time since surgery, he is recovering from surgery of his own.  He says that she looks amazing and he can't believe how awesome she is doing!  Thank you Lord! Wants to see her back next week after a week of no tube feeds to make sure she is maintaining weight. If weight stays in check then he'll pull the gj tube and then possibly go home the end of next week!  Going home early.....priceless.  Thanks for all the prayers and love sent our way, not very long till we are back in NC, HOME!

Sunday, July 14, 2013

Sunday, July 14th...

Three days of fats on board and no belly swelling! :)  Still early to be sure but it looks like the chyle leak is fixed. Thank you Lord, the Great Physician/Plumber!:)
Addison and I went to the Como Zoo and Conservatory here in Saint Paul Friday and had a really awesome day!  It is a very nice zoo and the weather was perfect.  Micah seems to be doing a little better each day, so thankful for that.  Missing NC and family and friends.  Also, had an awesome surprise in the mail, a very good friend shipped me a good ole southern pound cake, and it is phenomenal!

Friday, July 12, 2013

Friday, July 12th....

Six weeks....wow.....it's hard to believe it's already been six weeks since Addison's surgery.......on the flip side it's hard to believe it's only been six weeks.
Addison has been amazing through this whole process. She is such a strong, beautiful young lady and I am very proud and honored to be her mother. 
There will never be enough thank yous Thomas and I could say to express our gratitude for everything that has been done for our family.  We are blessed and humbled.
The Lord has brought Addison and us through this very difficult time and answered so many prayers.  He is a
Good God!
Fats were added to her diet yesterday so now we we'll just watch and see if her belly swells. If it does then the cut lymphatic vessel isn't healed, if it doesn't then it is, I'm counting on the latter. 
Returning home is getting closer and closer!
Pictures today provided by my silly daughter on the kiddie playground here. Lol

Wednesday, July 10, 2013

Wednesday, July 10th....

Thank you for answered prayers.....Micah had follow up appointment with the surgeon yesterday and she changed all sorts of meds around and he already seems improving this morning. :) Thank you Lord!  Still have to watch and see, but a really great start.
Addison is still doing awesome, pain from time to time but nothing like before surgery. :)
We are off to the movies today to check out Despicable Me 2, hope everyone back home is happy, healthy and loved. :)

Monday, July 8, 2013

Monday, July 8th.....

Today was a doctor day. Addison had three appointments today, as did Micah.  Addison gets to try and add fats back to her diet on Thursday.  The hope is that the cut vessel has repaired itself at this point.  If it isn't fixed, when she starts to eat fats her belly will swell up.  Then we'll have to revisit surgical options to repair the vessel.  Pray for no swollen belly this weekend please.  Also, please pray for Micah, they are discussing putting him back in the hospital, his nausea and vomiting is still pretty severe and he has dropped two pounds this week.  They will know more after seeing the surgeon tomorrow.  Happy Birthday to Caroline!  Miss you guys! Wishing I was Dorothy with her red slippers and could click my heels to get back to North Carolina.

Sunday, July 7, 2013

Sunday, July 7th......

The visit from Thomas and Bailey was amazing! Love you guys sooooooo much! It was so hard to take them back to the airport yesterday. :(  Thank you Lord for giving them safe travel back home!  Addison is doing so great, it was so good for her to see her sister and daddy!  Hopefully, another three weeks and we will be back home for good.  I know you shouldn't wish time away but these three weeks can just disappear for all I care.  :)  Hope everyone back home is happy and healthy!
Notice in the picture lol, Addison is terrified of the Ronald McDonald statutes all over the place! LOL. Can't say that I blame her.

Friday, July 5, 2013

Friday, July 5th.....

HAPPY, EXCITED, THRILLED.......YAY!  THOMAS AND BAILEY SURPRISED US AND JUST SHOWED UP YESTERDAY!! Addison and I are so happy to see them!  Thank you to all who made this possible, this is the best medicine in the world.  Addison and Bailey are so sweet, they have missed each other so badly.  Bailey would never admit it but you can see it in her eyes. :)  Also, seeing them together confirms that I thought Addison had hit a growth spurt while here, they use to be same height but now next to each other Addison has a good inch on Bailey, sorry Bailey. :p No more time to blog, got some important family memories to make :)  Thank you Lord for this awesome surprise and their safe travel, and please bless those who made this surprise possible. AMEN

Wednesday, July 3, 2013

Wednesday, July 3rd...

Had a nice day in the sun. Everybody was feeling pretty good so we went to a beach on Lake Harriet.  It was a beautiful day for it and the kids enjoyed putting their feet in the water.
Really thankful the Lord has looked out for them and us through this whole journey. He truly is a Mighty God.  Thankful for all the prayers and love from each of you as well. Hope everyone has a wonderful July 4th!

Monday, July 1, 2013

Monday, July 1st....

Today was one of those all day doctor fests. Between Addison and Micah we had six doctors appointments and an hour at the pharmacy refilling meds.
Excellent news today, the doc feels Addison is doing well enough to go to tube feeds only at night and not twenty four hours now, Yay!
She is so glad to be free of the carrying the feed pump during the day.  It's the little things :)
Miss you terribly Thomas and Bailey....