Sunday, June 23, 2013

Sunday, June 23rd

Please continue praying for my sweet nephew Micah, even with the ng tube back in place he is still vomiting. 
Addison and I had a pretty good day. We got the pleasure of meeting four other families who have had children living with pancreatitis and have been through or looking into having the TPAIT surgery.  For the next two days there will be conferences held for these families to get the latest information on the surgery and diabetes from the field experts.  Hopefully Addison will feel well enough to attend some portion of these conferences.  Two of the girls we meet were thirteen like Addison and over a year out from surgery and have been pain free.  Amazing! 
It's so cool to meet with other parents and kids who have basically lived your life.....a life with pain, with no answers, no hope, and then they too found the University of Minnesota and the transplant team that has given us all hope and thoughts of a life not based or planned around disease. 

2 comments:

  1. April, just to let you know I am praying for Micah as well as Addison. She has come a long way and I give JESUS CHRIST all the praise. The doctors are wonderful, but without HIM giving them the knowledge they would be helpless. You are a wonderful mother and I am sure it is a rough road to travel, but remember you are never alone. GOD bless you and you are in our prayers.
    Shirley H.

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    1. Thanks Shirley, I really appreciate the kind words and encouragement. :)

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